Good Riddance 2016!

As many of you have probably noticed, 2016 did not bode well in the fond memory category for many Americans. For our family we couldn't agree more that this was probably one of the worst years on record when it comes to bad news received.
It's hard to believe it's already been nearly a year when Mayleigh started seeing signs of change in her health. Although it took till about April for her to come to us with concerns, she was noticing some light symptoms even as early as March of last year. For what it's worth, she could have already had her first cells growing inside her as early as this same time last year which is just mind boggling to think about. Time seemed to stand still for the 3 months it took to try and find the answers to her issues and since her diagnosis, it's been a whirl wind of blurring weeks and months.

To say that our lives have changed would be an understatement. Each one of us have sacrificed in some way to make the accommodations and living space work to our specific needs. For both sides there has been give and take, forced change and uncomfortable moments.
Any time ones personal space becomes a shared space, you can be sure that there will be some conflict of interest. Having previous freedoms and familiarity altered to fit the requirements of another is sure to bring about some form of emotion and or frustration. Anyone who has had a roommate can most likely relate to this change of space. Even if it is family; to go for a period of time with a particular regimen then be thrust into indifference of habit is bound to bring a level of sighs and head shaking.
While problematic this can become, lack of communication is usually the culprit when it comes to long term issues such as this and by being able to discuss these issues and potential conflicts we are able to have a cohesive, respectful relationship that has benefited us all greatly. I think everyone has their moments of needing space, trust and comforts but it takes an invested interest in each other to make it work. We love Ian and Mayleigh so much we will do anything to make sure their future is a success and that includes providing them a stress free environment that does not worry about cancer cause like I've said from the beginning.. losing is not an option.


I'm not sure when it all began. When the changing of a year started coming with a reset button. To turn the wrongs to right, to lose what you have gained, to get back to the way things used to be. Even though we all grow in some way or another (sometimes sideways unfortunately :P), it seems as if most would like to turn back the clocks and forget about it all; including positive events that may far supersede any of the negative that may have occurred.
Why is it that people often tend to cling to the negative moments of life? Considering they hypnotize us into disliking ourselves by creating anxiety's, paranoia and lack of confidence it would seem like an obvious choice to stray away from these pitfalls.  I myself have thought many times that I'm good enough, I'm smart enough and dog gonnit... people like me!.. yet I still question, contemplate and fear for lack of acceptance foremost when it comes to my thought process. Many times I overanalyze and worry for no reason other than I can't shut my brain down and take a break from beating myself up. I am by far my worst critic and will find ways to knock myself down or make sure there is no pedestal beneath me. I do feel I am humble in most cases and never want to feel over confident or even arrogant. Yet there is a fine line between those two words. If only there was an easy way to boost pride without effecting ego...there's probably a pill for it I'm sure. Regardless, I know I am not alone in hearing a doctor tell you to avoid stress, anxiety, something about coffee and other words I can't recall. But how is it that we have created so many things that have simplified our lives yet our panic is through the roof? I've heard of more people having panic attacks in the past 10 years than I ever did in the prior 20. I'm not even sure I knew what a panic attack was until my early 20's. Now, nearly everyone has either suffered through one or know's somebody that deals with them on a regular basis. And even if it's not panic, people are dealing with anxieties in other ways too such as misophonia . thanatophobia or even worse novinophobia.

Alas my point for all this rhetoric...(or am I  just being long winded and should shut my trap? arghh... the struggle is real folks! )

Even though one of the most horrific things we could ever think to happen has effected our lives, we are continuing our journey on a perfectly paved road that no one has traveled upon. We are in control of our vessel and nobody is going to take away the good that has come about through all of this. We may forget those moments easier or find a way to replace it with pessimism but ultimately the things we need to focus on are #1 making sure Mayleigh and Ian are provided for and #2 we beat cancer.

I am going to try extra hard this year to let go of the worry over things that truly do not matter. If I had a reset button I would only use it to change my negativity into positive thought and appreciation. To be thankful for every moment I have with my family and raise them up every chance I can get. I apologize for not loving more but I will most definitely be changing my tune in 2017. I love you guy's with all my heart and am hungry for the change in all of us!!! 

Mayleigh continues to be in remission after getting another bone marrow aspiration and was able to take somewhat of a break off from the multiple chemos this past couple weeks. She is preparing for another round of cytarabine though and we are not looking forward to this as it's been a bit rough on her blood counts. We've all been sharing a very nasty cold as well but thankfully Mayleigh's counts are actually doing very well at the moment due to again no chemo. We will provide another update as soon as we get into this next protocol but so far so good! Thank you again for all the well wishes, thoughts and prayers this year. We cannot say it enough that we are blessed beyond our means with love and support!!! <3

Birthday Wishes Come True!

It's a BIRTHDAY WISH COME TRUE!!!!
As Mayleigh's 21st birthday approaches us this week; we received the greatest birthday gift; continued REMISSION! Mayleigh and Ian went to OHSU last week for another bone marrow biopsy. Seeing her feeling better and having less chemo over the last few weeks was fantastic; however, knowing she missed some of the treatments to keep on protocol unfortunately left a little room for worry to creep its ugly head in. Larry and I couldn't be happier to know that for our daughter's 21st Birthday, we had something far greater to celebrate!!

Thankfully we can truly celebrate knowing that the best days for Mayleigh are yet to come. I know that one cannot truly appreciate the light...unless you experience darkness. Having gone through some scary darkness the last few months, has us all very happy to have continued light cast upon us. I only want to have this difficult trial catapult our daughter into a brighter future as she learns to deeply appreciate life, family, friends and a healthy body. While it is sad to witness any young person having to overcome such huge challenges at such a young age...I believe it can be a "blessing of perspective" that can lead to a greater love and respect of life that many people never realize in their lifetime. Cheers to life's beautiful yet hard life lessons!

We look forward to seeing Mayleigh's inner light grow brighter as quality begins on the inside and works it way out. We also want to celebrate Ian's good news. He has been working graveyard shifts as a caregiver for the Star of Hope. This has been hard as Mayleigh's treatments require being awake in the day so Ian has often gone without sleep to help her. He applied to take a CNA course so that he could open opportunities for better pay and day shifts. He was accepted to take this course on scholarship starting in January. We are very proud of Ian for taking steps to make a better future for Mayleigh and himself. We have a LOT to be grateful for this holiday season and we are so thankful for the continued love and support! We wish you all a very Merry Christmas & a blessed new year!!

And The Winner Is........

NOT CANCER!!!
With the weeks and months passing us by at a near record pace (pretty sure I say this every other day), I'm finding it very difficult to find time to sit down and put to words what hasn't already been said and or written already.
My wife has been doing a tremendous job keeping up with the Blog not to mention: the house, the appointments, the rides, the medications, the shopping, sewing, cleaning, cooking etc. etc etc.........I simply have been in a rut on how to focus long enough for one and two where to begin.

It's been over 3 months now since I have written a post to this blog. In that time I have returned to work where I have been consumed ever since. I was under the impression I was receiving a new job title and some new responsibilities this year so I quickly went back to increasing my knowledge on my work. This included a ton of Google Apps hours as well as new equipment installs that were waiting for me due to being gone for 3 weeks in July.
As the computer tech, the majority of my work is done during the summer time in preparation for the new year. This year we would also be taking on a new tech and therefore I would be training someone new as well. This would prove challenging as I was so far behind already. I also struggled to get things to work properly due to network issues which set us back quite a bit and I ended up working 95 hours over 4 days this past labor day weekend to get things in order. I simply cannot let my mind rest if I know others are unprepared or being held back by the technology they possess. And for a teacher... the focus is the beady eyes staring back at you 0.0

Just imagine yourself sitting in front of 30 kids staring at you as you fumble with the projector and try and just get the image on the screen to show up. Or get a doc cam to function properly when needed. I would find it extremely nerve wracking so I take it upon myself to make sure nearly everyone is at or near 100 percent ready to go for the fist day. As the technology has increased this has proven to be very challenging to say the least. Needless to say we were fairly successful and I am thankful for the extra help this year. Especially with all that's going on at the home front. I have also missed several days due to driving to Eugene with Mayleigh for her appointments for the days we feel are necessary for us to be there. It's very few and far between in comparison to what Mayleigh has to deal with but thankfully again we have TransLink to back us up in case she needs a ride. Camille and Ian have filled in as well and overall, with some treatments being able to be administered here in North Bend, it's really not been that bad the last month. She has also been away from cytarabine, a nasty chemo that wasn't allowing her to eat nor feel up to doing anything. I'm not looking forward to it's return which will be right after the new year :\

As my wife mentioned in the previous blog, which was nearly a month ago (sorry folks), Mayleigh has been now taking Erwinase to replace the Peg Asparaginase that sent her into anaphylactic shock.

This is an intramuscular injection that requires 3 shots in the keester 3 times a week for 2 weeks straight. And being that she was behind 3 weeks (no pun intended) once getting the drug, she has needed this chemo every week since. On top of that she still gets Vincristine and Methotrexate in her port and her ommaya still. At least one time a week she gets all 3 kinds of chemo in one sitting. Crazy thing is, you would never know it compared to the one dose of cytarabine.  She has been eating normally (3-4 steaks a week) and starting to hang out with her friends again. She has been night and day difference ever since starting the erwinase and we have noticed a significant change in her demeanor and spirits.
She even felt up to going out on Halloween trick or treating with a couple friends whom have been very supportive of her and definitely bring a smile to her face. We really love to see her turning the corner and starting to wake up from the nightmare that has been her life as of late. Every time she goes to the hospital or drives to Eugene it's never just to go for a checkup or pain free. She is always getting stuck with needles or put in situations that I myself would dread. Especially on a near daily basis. Her life is all about getting better and we couldn't ask for a better attitude when it comes to just dealing with the things you really don't want to hear about. She knows the path to a cure and she does not lose focus. Maybe forgets a pill here and there or to drink water but she's on the appointments.

Speaking of which, her doctor wanted an update since we had missed over 3 weeks getting her started on the erwinase so he ordered a pet scan. We were also very ancie to find out where she was as we had no idea what to expect after having a remission status when leaving OHSU. We were told and forwarned that leukemia likes to hide in nooks and cranny's and therefore that is why she needs so many treatments and for so long. That was again 4 months ago so we were beginning to wonder when we were going to get news "on the inside".

The doctor told us it would be a week before she would get the results and he was going to be on vacation so we pretty much weren't going to receive an answer. Camille was very curious though and dropped a line just to see if perchance we would be hearing sooner and were told that if the PA felt comfortable she would let us know.

In the meantime, Mayleigh's hair continued to thin out and was becoming more or less unmanageable so she figured it was time for a change. We have gone through all kinds of hair do's when it comes to Mayleigh's mop and at this point nothings shocking. I felt compelled to "give up" years ago to avoid the stress of what most find a way to express themselves. Not to mention she was artistic so it seemed to go hand in hand I guess... at least that's what I told myself.

Some were better than others snd I'm sure she would be the first to agree and won't be trimming that direction again... But overall she's done a pretty good job considering she's the one who cuts and trims and twines her way into her new creations. When I heard she was wanting to do a mohawk I was as calm as any parent hearing their child is getting a mohawk and waited for the sheers to do the deed.

I was honestly shocked when she came out. I didn't think for a minute it was going to be a good look but now that I've seen it I like it a lot.
I think it's fitting her nicely and she wears it very well!

She seems stronger and maybe even more determined so I'm happy she did it. With her looking as if she was leaving cancer in her wake, and her feeling better than she had in so long, we were feeling very confident that we were going to get the results we were anticipating and that was a clean bill of health. But as the week began to drift by and no phone call from the doctors office, it was starting to weigh on our minds that the PA may have saw some information she didn't feel comfortable speaking to us about and was waiting on the doctor. It was contradictory though of our true feelings and we continued to wait patiently and hope for the best.
On Thursday, the PA called and spoke with Camille. I waited in the other room so I couldn't hear and as hard as I tried to wait till she was done to get the news it's pretty much impossible when you just know someone so well. All I heard was "fantastic" in her beautiful relieved tone and I new things were on the up and up.
She didn't go into great details but she informed us that there were no new signs of cancer growth but that there were some spleen numbers that she didn't have an answer for but the doctor would cover them on Monday. :D It was just the news we were anticipating! Camille drove to Eugene and the doctor continued to inform her that there was no new signs of cancer growth, all tumors had continued to show no signs of existence and she is still on the road to recovery! HALLELUJAH!

With the world spinning out of control once again on the outside of our 4 walled world, we continue to be extremely thankful for all the love and support we continue to get from everyone around us. People are always asking me first thing they see me "how's Mayleigh?" before anything else and it makes me feel so good knowing people are thinking of her. My role at work has changed dramatically in that I am working more behind the scenes so I'm not seeing my co-workers in the classroom as much and it's definitely hard to get used to. I feel very distant at times and that happiness from solving all their issues has been replaced with keeping things going for our new tech who is continuing to do a great job. It's especially hard though considering all the support they have given me since this began and I haven't had much time to spend with any of them.

Just know that every donation, every thank you, every card, every thinking of you, praying for you , thoughts for you that you have given towards my daughter have never once been forgotten. I appreciate each and every one of you and I know for a fact it is curing my daughter having so many sending their love.
Camille and I both are grateful for all of you and hope that the world can mend just as she has. It's getting very ugly out there but we are the only ones that can repair it. Sometimes I guess you have to go through some bad times to rid ourselves of the cancers of the world. Lets hope that we can find the strength in each other to bring about the change we all need and that's to simply care for one another... no matter who it is.

Even if he's a pumpkin head! :D

The Garden

This is an image that we hung in Mayleigh's hospital room to help her "grow flowers, not weeds"! We have needed to keep this in mind...especial over the last few weeks. Since Mayleigh had a very bad reaction one of the drugs (PEG+Asparaginase); she needed a different drug to replace this one in the protocol. As previously mentioned, the alternative drug is one that makes an intense protocol even more crazy as for every one dose of the PEG...we now need 6 intramuscular injections visits (done every other day) with 3 injections at each visit to replace the PEG. This also requires 6 extra trips 2+ hours each way to get to each appointment in order to get these injections. Determined to do EVERYTHING...we of course were ready to just keep driving and surviving no matter the the size of the hurtle that we keep having to face.  Unfortunately the manufacturers of this drug Erwinase, had their own hurtles to jump. This is a rarely used drug worldwide and therefore the need is great but the demand is not. We were informed that she would be one of only 24 or less patients in the entire USA to need this drug. When it came time to order it, we and  the doctors were ready with the pre-authorization from our insurance for the $19,000 per injection drug (unreal I know) and the research I requested on combining this drug with other chemo drugs (which in my research had shown a possible concern) had also been looked into. The pharmacists & doctors at OHSU reassured us that this combination of drugs should not have a negative reaction. However, we did not anticipate the doctors to call us saying "we cannot get this drug and we don't know when we will"! The manufacture of the drug has had to start over with production and approval from the FDA as it had an issue with the last batch manufactured. We don't know what it means for Mayleigh's cancer as the protocol with these drugs has proven to be quite successful but there is no research known for not having this drug available. Doctors cannot tell us what NOT giving this drug in a timely fashion will be for her. I wouldn't want to give Mayleigh a batch of drug that isn't up to FDA inspection of course but I hated not have this for her as we don't want the cancer to creep back in as we wait. Chemotherapy does reminds me of trying to grow a garden (non organically) as you treat it with horrible chemicals to KILL the WEEDS (cancer) but yet you want your veggies (or flowers) to grow and thrive in this same soil in the future. I would prefer treating the soil with nutrients it needs and pulling out the weeds but since the weeds in Mayleighs garden grew out of control... chemically killing them all is necessary and we will replenish her soil with the nutrients it will need once the weeds are manageable. Since I don't want weeds growing in her mind or ours, we will not help any weeds grow by giving them water (thinking the worst). We will envision her garden flowering with beautiful, healthy blooms of every color and water it only with the intentions to grow flowers. If "weeds" continue to grow...we will pull them up or continue killing them as they sprout knowing we'll see her garden bloom someday!

On Monday we learned that we would again have some "weed control"...the Erwinase was release from the FDA and Mayleigh was one of the first to get this new batch. We drove to Eugene immediately and Mayleigh did very well with the first injection. She is traveling again today to get the second batch plus multiple other chemo drugs to kill all the weeds in her garden! We are behind protocol by several weeks but the doctors feel like we do...that Mayleigh will still "BLOOM"! Thank you again to everyone for your continued thoughts, well wishes and prayers. We are grateful to have so many people ready to help us water Mayleighs garden!!

What Cancer Cannot Do

It has been a long few weeks for our family, especially for Mayleigh of course. We are doing another two week cycle of Cytarabine four days a week for 2 long weeks. This drug has caused havoc to her system and unfortunately it did again. It reduces her red blood cell counts, making her weak and extremely tired. It makes her more nauseous than other drugs and makes it very hard for her to eat. It also causes a fever... which is like walking a very fine tightrope since drug induced fever is not a huge deal but a fever from any other source (even just over 100.4) is an EMERGENCY since it could be life threatening. She had to go the ER again (where she is exposed to even more germs) just to make sure it isn't a bacterial fever. Thankfully it didn't grow out anything and we feel certain that this was again, a drug induced fever. We had to find articles about this drug and the fever side effects to ease her doctors mind as he wanted to consider a surgery to remove her port incase it was infected and insert a PICC line. Mayleigh stood up for herself to the doctor, reminding him that at the last exposure to Cytarabine ended with her in the hospital with the same exact symptoms with no found infection anywhere again. She wasn't about to "jump the gun" to remove her port just yet and I am proud of her for learning that it is OK to question her doctors. The doc agreed to wait until she was done with this drug cycle to see what happened. Sure enough within less than a day of stopping, her fevers went away. She did require another transfusion (which we all expected) resulting in some color coming back to her cheeks, she was hungry for one of Dad's amazing smoked steaks with a side of his golden potatoes and her spunky personality came back to. Mayleigh continues to prove what a strong young lady she is! While cancer has caused our family a lot of stress...we refuse to let it consume us with fear or anger. Instead we grow closer, love each other more, appreciate the small things and value what we do have... remission, optimism and faith! So cancer... you are limited!

Mayleigh may not fully realize how amazing her soul's growth is just yet, but just like this rock blocks the path leading to the light this seed needs to thrive; the seed didn't know that it would eventually break through the soil to feel sunrays that will allow it to grow! She has strong roots that we will continue to water... knowing that someday we will witness her flowering! Larry and I are so proud of her determination and willingness to keep doing everything required to continued kicking cancer's ass. It will take this strength as the next few weeks, months, years of her continued treatments aren't going to be easier. She now requires 18 intramuscular injections over the next two weeks, then again many times in the future (since she was allergic to the IV form of asparaginase). This doesn't count all the other chemo treatments to work around these injections. This protocol is difficult but has proven effective... so it's a good thing she has a strong and very stubborn spirit that will allow her roots to grow deeper while we wait till she can bloom!!

Lastly I would like to thank Mayleigh and Ian for their love and support towards Larry and I through this as well. She realizes that the burden of this treatment weighs heavy on us all and that as her mom (with health issues also); needs to recover for the added stresses in order to continue holding some of the weight. Larry and I had made reservations clear back in the spring to camp in September at one of our favorite places to be in the world...the Redwoods! We had never gotten to camp at Jedediah Smith State Park and while we struggled with the idea to go while Mayleigh wasn't feeling very well, she encouraged us to go. Ian was with Mayleigh and we were only a few hours away if needing to come back, so off we went. Thankfully we found some respite in the Redwood forest and I felt my strength come back just being there for a break. It is indescribable the peaceful serenity that Larry and I feel everytime we walk through the mystical groves of the Redwoods. It is impossible to capture the size and beauty of these trees. Redwoods survive through thousands of years by intertwining their roots so that when one tree is under stress, it can still survive through accepting the nutrients it needs from the other trees. Our family doing the same...growing roots to support each other so we can all survive and thrive!!

The "Step n' Slide" Effect

Ever climb a sand dune?? It is a series of stepping up just to slide down, step up more and slide again. Progress, but slow, hard progress. This feels like our lives right now...exhausting! Mayleigh and I went to see Dr Sharman in Eugene yesterday for labs, chemo and a talk about options since Mayleigh had such a bad allergic reaction to the last chemotherapy drug that landed her in the ER. He started with the good news first that we CAN work with our local oncologist to have 3 of the four treatments needed (during SOME of the consolidation therapy protocol) each week in our area. We were then informed that there is another drug substitute needed to replace the drug she's allergic to. It however, will require 6 treatment doses for every one dose of the drug she's allergic to and that this drug is EXTREMELY rare so we need to do infusions of it in Eugene. So, we are required to follow an INSANE protocol to treat her A.L.L cancer & add in an INSANE number of additional treatments due to allergy; then throw in traveling for more than 2 hours each way for most treatments...that's enough stress for anyone right? Then we add in that Dr. Sharman MD in Eugene is required to work with Dr. Latan MD up at OHSU in Portland...who is now required to work with Dr. Cook MD (local doc) in order to get the 3 out of 4 treatments locally (sounds great right??) but after hours of phone calls later to determine who is overseeing the insurance coverage/pre-authorizations, who is liable for the treatment at which location, who is in charge of making sure the orders for the Outpatient infusion center got the drugs needed and that the schedule for all doctors, clincs, rides, insurance pre-authorization and patient is ready in order for that all to happen? That's right...ME!

This ladys expression is how I'm feeling right now. As I continue to figure this all out, organize and argue with doctors, clinics, hospitals, insurance and making sure there are rides to and from each appointment...my heart aches thinking of anyone who doesn't have a feisty advocate (momma bear) to jump the hoops to ensure the treatment protocol is even being followed. Cancer patients who require this kind of treatments have enough to stress over and "chemo-brain" (as Mayleigh calls it) & should NOT have to do what the staff SHOULD be doing. That and it is they who also get paid good money from us and our insurance to do their job!! Being that I have a full time job as momma bear and a more than full time job running my company Framehuggers...along with a part time volunteer job as the VP of our diabetes association (while living/treating my own type one diabetes) and trying to move Mayleigh, Ian and 2 Chinilla's, 2 Guinea Pigs and a hedgehog into out home...well lets just say I may need some prayers for my sanity please :)

As we aim our arrow ultimately at our goal; we will have to accept that the slip in our steps is not setting us back; but is instead a force of energy behind every struggle that will propel us to hit that target dead center! I'd like to thank my incredible husband who has dedicated this entire last "holiday" weekend at the school district (as he's been the ONLY computer technician for the last 8+ years) working from early morning till after midnight, trying to play catch up on what should have been a relaxing 5 day break before school started. He had to transport and unbox new computers, update and or install software on every computer,install all smartboard & projectors, update websites (mine and schools), start training a new computer tech (yea but more work to train), educating himself to pass tests required to become a Google Certified Trainer so he can educate teachers....all this just to come home & hear my woes. He is my rock and helps me keep/find my sanity in his loving arms and listening ears (sorry I make your ears hurt). You hold me up Larry Workman (along with an entier school district) and you should get Man of the Year award in my book!!!

Chemo Warrior

What can I say; this image describes my daughter very well. Today she proved to be a WARRIOR! Mayleigh has shown time and time again her inner strength, fight and determination to continue beating cancer! Today chemotherapy tried pitching us a fastball once again. She has had a very tough last two weeks of traveling four times a week, 2.5 hour drives each way though Translink (which we're grateful for but HATE having to use); riding with well-meaning talkative strangers while just trying to rest from Chemotherapy. She woke up today feeling "OK" compared to the last few weeks of nausea and headaches. We are in the next 2 week phase of her treatment protocol that requires her to travel only once a week. She was very excited to know it would be an "easier" week for her (we all thought). Today's' concoction of chemo had been given to her before while at OHSU and she tolerated them OK in the past. Today however, was another story. She was given PEG-Asparaginase through her port and was hit quickly with an itching sensation all over her arms and a tightening in her chest/throat. It scared her and panic kicked in with each restricted breath. They quickly gave her an antihistamine & medication to help her through her port. The Willamette Valley Cancer Institute's staff had EMT there to get her to the next building (hospital is next door) within minutes. Her pulse was so high at times they couldn't read it but I was told they were between 180-200. She started to get improvement fairly quickly and the exhaustion from the experience and drugs kicked in so she could rest. She called me very groggy and out of it to tell me she couldn't remember what the ER doctor said. So a few determined "momma bear calls" later...I had her Oncology doctor and the ER doctor on a 3 way call to make sure we were all on the same page with a new plan. Mayleigh will stay at the hospital tonight for more red blood cells as she continues to be very anemic. This will help her in many ways, keep her resting and hopefully stable through the night until we can go get her and take her home!! I was told that the drug PEG-Asparaginase is one that is known to cause issues as the way it is metabolized in the body is different each dose, with tolerance getting worse after the first treatment.

Cancer sucks, it tries growing its way into too many lives and can effect everyone... even those without cancer! I am sure I'm like most parents, its incredibly hard to watch your beautiful child thrown such a tough curveball. But even though she hates baseball, she is swinging, hitting home runs everyday and winning no matter what pitch is thrown at her. So not only is she a WARRIOR; she is a HERO too!! We love you Mayleigh Workman, together we WILL BEAT THIS AND WIN!!