Lost

Mayleigh will be on a ventilator and dialysis for what we have been told could be weeks. We are so overwhelmed and have no idea what our next steps are. The doctors still tell us this can be reversed but it's going to take time. Her kidneys, lungs and liver have all taken huge hits and they are doing all they can to keep her sedated, out of pain and comfortable. It's so hard to not get to talk to her and to see her like this. It would be my worst nightmare to have this happen to myself let alone have to watch our only daughter go through this. I know we have lots of people praying for her and that have put her on prayer chains and sent her positive thoughts etc but it seems it's all been for not at times. No matter how hard we try and B Positive, something has always altered our course and pain and suffering have been the result.
We are devastated for her and hearts are aching badly. We know we can't just stay here for weeks on end but how can you leave your child and be 4 hours away at a time like this too... It's a lot to take in and I just pray her white counts come in and she engrafts before we have to make the decision to go back home and regroup. Camille is running short on supplies and the school year is quickly upon us and I have so much work pending. It's all too much to comprehend and prepare for. We just want to hear her voice again! <3